A Ventography!

Just two moms letting off some steam


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PREVENTING AUTISM – WHAT THE PARENTS SAY

preventing autism video

This is a video we found on Recovering Kids, a website owned by Regarding Caroline.

Recovering Kids asked the members of their group what can be done to stop the increasing numbers of children being diagnosed with autism. Their answers give valuable insight to anyone who is terrified of the epidemic that is changing the face of a generation of children…. currently one in every 50 children is affected by autism.

We wish we would have had this advice before our children were born.

Do you have advice to add?

We’d love to hear from you – parents who are living with autism every day. We respect your opinions and have learned more from you than from our pediatricians. Please write to us and let us know your best advice. We would like to publish your responses to help other parents who are just beginning their journey with autism.


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CLINICAL TRIAL FOR MAGNETIC RESONANCE THERAPY ABOUT TO OPEN

MRT boy

We went to a 3 day autism conference recently and learned a lot.  One of the most amazing things we heard about was Magnetic Resonance Therapy (MRT). In mom language, MRT is pulsing a big, super strength magnet on your child’s forehead to re-set the brain’s electrical system. This therapy is very new and very expensive (one month is $11,500) so we won’t be using it with our children any time soon. But we wanted to make others aware of it, especially since Dr. Bradstreet is about to open clinical trials for this procedure. If your child is selected, the procedure will be completely free.

If you want to learn more about MRT, check out this website. They have information about the cost and side effects as well as video testimonials. Dr. Bradstreet said he will post information on how to apply for the clinical trial today on his blog. You can also scan here to look for information on the trial once it is posted.

You have to watch this amazing video of an 18-year-old boy with severe autism. Warning… the video is disturbing. In the “before” video the boy is violent… punching himself over and over and attempting to hit his mom. After MRT, he is able to play ping-pong, shoot hoops, and he can laugh! The quality of life for both the boy and his mother is remarkably improved.

Disclaimer: We are not patients of Dr. Bradstreet and we know nothing about the effectiveness or safety of this therapy. Please do your own research. We are simply passing along information.


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ACETAMINOPHEN CONNECTION TO AUTISM, ADHD, AND ASTHMA

autism rates increasing

Dr. William Shaw of Great Plains Laboratory recently published a new article about the connection of acetaminophen to autism, asthma, and ADHD. He will be  holding a free webinar on October 30, 2013 from 7:00 – 9:00pm  CDT.

According to Dr. Shaw, it seems that the marked increase in the rate of autism, asthma, and attention deficit with hyperactivity throughout much of the world may be largely caused by the marked increase in the use of acetaminophen in genetically and/or metabolically susceptible children, and the use of acetaminophen by pregnant women.

Items he will be discussing are:

  • Could the use of certain antipyretic drugs, especially in conjunction with vaccines, be a cause of autism?
  • Metabolism of Acetaminophen
  • Immune Abnormalities Associated with Acetaminophen Use
  • Purkinje Cell Abnormalities, Autism, and GSH Depletion
  • Special Concerns about the Long-Term Defective Quality Control of Acetaminophen Products

To register for the webinar, go to:

https://www1.gotomeeting.com/register/425554232

We attended Dr. Shaw’s first webinar on this subject, so if you are interested in this topic and won’t be able to attend the webinar, feel free to view our summary here:

http://ventography.wordpress.com/?s=acetaminophen

UPDATE February 25, 2014: TYLENOL IS LINKED TO MORE THAN ADHD… WHAT THE MEDIA ISN’T TELLING YOU!

Warning from the FDA March 2014.


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TOP TEN TOXIC CHEMICALS SUSPECTED TO CAUSE AUTISM AND LEARNING DISABILITIES

“Knowledge of environmental causes of neurodevelopmental disorders is critically important because they are potentially preventable.” This is according to Philip Landrigan, MD, MSc, a leader in children’s environmental health and Director of the Children’s Environmental Health Center (CEHC) at Mount Sinai School of Medicine.

Children’s Environmental Health Center (CEHC) developed a list of ten chemicals found in consumer products that are suspected to contribute to autism and learning disabilities. The top ten chemicals are:

1. LEAD

  • HOUSE PAINTS: Before 1950, lead-based paint was used on the inside and outside of most homes. It was used to make several colors including white, and was known to dry to a hard, durable surface. In 1977, federal regulations banned lead from paint for general use. But homes built before 1977 are likely to contain lead-based paint.
  • SOIL: Soil (dirt) near heavily used streets and roads may contain lead because lead used to be used in gasoline. Lead may also be found in the soil next to homes that previously had been painted with lead-based paint. Lead in the soil can contribute to high levels of lead in household dust.
  • DRINKING WATER: Lead may get into drinking water when materials used in plumbing materials, such as pipes, lead-based solders, brass and chrome plated faucets, begin to corrode (break down).
  • OTHERS: Lead has recently been found in some plastic mini-blinds and vertical blinds which were made in other countries. In addition, lead may be present in old toys, some imported toys, lead-glazed or lead-painted pottery, leaded crystal, and some inks, plasters, hobby and sports materials (such as artists’ paints, ammunition, stained glass treatments, or lead sinkers used in fishing). Lead contaminates are in some imported candy, especially from Mexico. Lead has been found in some traditional (folk) medicines used by East Indian, Indian, Middle Eastern, West Asian and Hispanic cultures. Cosmetics and hair dyes may contain lead.

2. METHYLMERCURY

Mercury is emitted from waste incinerators and coal-fired power plants. Fish is the main source of human exposure to methylmercury.

Other sources of mercury exposure include:

  • Dental amalgams used to fill cavities — the major source of inorganic mercury exposure in the general population
  • Drugs and related products, including topical mercury-based skin creams, infant teething
  • Powders, cosmetics, contact solutions, nasal sprays
  • Some vaccines
  • Breaking of household items that contain mercury, such as old thermometers or fluorescent light bulbs (for how to clean up breaks, click here)
  • Some folk remedies

3. POLYCHLORINATED BIPHENYLS (PCBs)

Found in fluorescent lights, pesticides, fire retardants, plasticizers, transformers, capacitors, paints, wood treatment, printing inks, recycled paper, roofing materials, and landfills. PCBs are in hundreds of items. For a full list, go to http://www.deq.state.or.us/lq/cu/nwr/PortlandHarbor/docs/SourcePCBs.pdf

4. ORGANOPHOSPHATE PESTICIDES (OP)

These chemicals are applied to crops, buildings, ornamental plants, and lawns. Agricultural uses include field applications on corn, cotton, canola, alfalfa, produce, and nuts. Exterminators use OP pesticides in residential and commercial structures and certain pest control products for cats and dogs contain OP compounds.

Products containing OPs include Dursban and Lorsban (containing the OP chlorpyrifos), Spectracide (containing the OP diazinon), and Sevin (containing the carbamate carbaryl).

People are commonly exposed to OP pesticides through eating fresh and processed vegetables, contacting pesticide-contaminated surfaces, breathing air near pesticide applications (both indoors and outdoors), and drinking pesticide-contaminated water. The multiple uses and ubiquitous nature of these chemicals result in routine exposures to many different OP pesticides for most people.

5. ORGANOCHLORINE PESTICIDES

  • ON LAND: agricultural fields, golf courses, sports fields, playgrounds, roadsides, gardens and lawns
  • AT HOME: professional exterminations and carpet treatments, flea sprays and dips for dogs and cats
  • INSIDE SCHOOLS AND COMMUNITY BUILDINGS: professional exterminations and carpet treatments, pressure-treated (CCA) lumber
  • ON BODIES: head lice treatments, insect and tick repellants
  • ON FOOD: during cultivation on farms as well as after harvesting to deter fungal growth during shipping

6. ENDOCRINE DISRUPTORS

Chemicals that are known endocrine disruptors include diethylstilbestrol (the synthetic estrogen DES), dioxin and dioxin-like compounds, polychlorinated biphenyls (PCBs), DDT, and some other pesticides.

  • BISPHENOL A (BPA) is a chemical produced in large quantities for use primarily in the production of polycarbonate plastics and epoxy resins.
  • Di(2-ethylhexyl) PHTHALTE (DEHP) is a high production volume chemical used in the manufacture of a wide variety of consumer food packaging, some children’s products, and some polyvinyl chloride (PVC) medical devices.
  • PHYTOESTROGENS are naturally occurring substances in plants that have hormone-like activity. Examples of phytoestrogens are genistein and daidzein, which can be found in soy-derived products.

7. AUTOMOTIVE EXHAUST

According to an article on cbsnews.com written by Sammy Rose Saltzman, “A new study shows that children in families who live near freeways are twice as likely to have autism as kids who live off the beaten path.”

A short list of the likely pathogens in car exhaust:

  • Carbon Monoxide
  • Nitrogen dioxide
  • Sulphur dioxide
  • Suspended particles, PM-10 particles less than 10 microns in size.
  • Benzene
  • Formaldehyde
  • Polycyclic hydrocarbons

8. POLYCYCLIC AROMATIC HYDROCARBONS (PAHs)

PAHs are a group of approximately 10,000 compounds. Most PAHs in the environment are from incomplete burning of carbon-containing materials like oil, wood, garbage or coal. Many useful products such as mothballs, blacktop, and creosote wood preservatives contain PAHs.

Sources of PAHs include:

  • BREATHING: Most people are exposed to PAHs when they breathe smoke, auto emissions or industrial exhausts. Most exhausts contain many different PAH compounds. People with the highest exposures are smokers, people who live or work with smokers, roofers, road builders and people who live near major highways or industrial sources. Automobile exhaust, industrial emissions and smoke from burning wood, charcoal and tobacco contain high levels of PAHs. In general, more PAHs form when materials burn at low temperatures, such as in wood fires or cigarettes. High-temperature furnaces produce fewer PAHs.
  • DRINKING/EATING: Charcoal-broiled foods, especially meats, are a source of some PAH exposure. Shellfish living in contaminated water may be another major source of exposure. PAHs may be in groundwater near disposal sites where construction wastes or ash are buried; people may be exposed by drinking this water. Vegetables do not take up significant amounts of PAHs that are in soil.
  • TOUCHING: PAH can be absorbed through skin. Exposure can come from handling contaminated soil or bathing in contaminated water. Low levels of these chemicals may be absorbed when a person uses medicated skin cream or shampoo containing PAHs. They are also found at low concentrations in some special-purpose skin creams and anti-dandruff shampoos that contain coal tars.

9. BROMINATED FLAME RETARDANTS (BFRs)

BFRs have been used for many years as the primary flame retardant in many products. These chemicals are commonly found in high concentrations in:

  • Electronic plastic casings (televisions, computers, etc.)
  • Foams in furniture
  • Textiles (drapes and children’s clothing)
  • Products that have a potential to burn quickly
  • The largest source of BFRs in the home is actually house dust, because these chemicals tend to be released from their products and settle throughout the home.

10. PERFLUORINATED COMPOUNDS

  • PFCs are broadly used in manufacturing, including protective coatings for carpets and other non-stick coatings, airplanes, computers, cosmetics, and household cleaners. Some well known PFC containing products include Teflon, Stainmaster, Scotchgard, and Gore-Tex.
  • For a comprehensive look at PFCs, including information on what you can do, visit the Environmental Working Group report of PFCs at the Environmental Working Group website.

To read the full article, http://www.sciencedaily.com/releases/2012/04/120425140118.htm

Sources:

http://kids.niehs.nih.gov/explore/pollute/lead.htm

http://www.diabetesandenvironment.org/home/contam/metals

http://www.deq.state.or.us/lq/cu/nwr/PortlandHarbor/docs/SourcePCBs.pdf

http://www.chemicalbodyburden.org/cs_organophos.htm

http://www.minddisrupted.org/about.php

http://niehs.nih.gov/health/materials/endocrine_disruptors.pdf

http://www.dhs.wisconsin.gov/eh/chemfs/fs/pah.htm

http://www.cbsnews.com/8301-504763_162-20025991-10391704.html


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TWO MOMS ON A CRUSADE FOR ANSWERS TO THE QUESTIONS THAT HAUNT US

What are the questions that keep us up at night?  Here they are:

  • Why did this happen to our children? Was it something we did or didn’t do? Was it something in their environment that we could have controlled?
  • How can we help our children recover or at least live life to their fullest potential?
  • What will happen to this generation of sick children as they grow into adults?
  • How do we prevent this from happening to future generations… to our grandchildren?
  • How can we ever die? Who will take care of our children?
  • Why does it seem that so few people and organizations are interested in getting to the root cause of the autism epidemic? Why doesn’t it get the same amount of tv time and funding as other childhood diseases that are not nearly as prolific?
  • What are these “canaries in the coal mine” trying to tell us as a society and why is nobody listening?

These are the questions we’re often too afraid to verbalize because it takes us to a place of such fear and anxiety that it’s hard to continue on with daily life and be the moms we are called to be. But we’re going to discuss them because we need your help. If we (parents who are struggling to find answers for their children) banded together to demand answers and share our knowledge, we know we could move mountains.

Please join our crusade for answers. Forward this post to your friends and ask them to join with us too.

For more on our crusade for answers, please visit our facebook page and perhaps give us a like: https://www.facebook.com/healthinducedautism


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UPDATE FROM DR. SHAW – ACETAMINOPHEN AND AUTISM CONNECTION

Back in January, we did a post summarizing what we learned from a webinar we attended given by Dr. William Shaw of Great Plains Lab. He discussed the connection between autism and acetaminophen. Dr. Shaw did not release any official information or transcripts after the webinar, despite tremendous public interest, because he had not yet released his official study. But just yesterday, we got Dr. Shaw’s e-newsletter, with an official statement about the autism acetaminophen connection.

Here is a summary of what the update said (in mom-lingo):

  • “It appears that the marked increase in the rate of autism throughout much of the world may be largely mediated by the marked increase in the use of acetaminophen in genetically and/or metabolically susceptible children and perhaps the use of acetaminophen by pregnant women.”
  • Because many children with autism have defective sulfation, they cannot properly detoxify acetaminophen. Therefore, it becomes toxic.
  • This then leads to intestinal Clostridia bacteria overgrowth.
  • Then the Clostridia bacteria cause overproduction of brain dopamine and reduced concentrations of brain norepinephrine.
  • Too much dopamine leads to obsessive, compulsive, and stereotypical behaviors.
  • Too little norepinephrine leads to reduced exploratory behavior and learning in new environments.
  • Because sulfation is often defective for people with autism, the body cannot use proper pathways to get rid of acetaminophen. Therefore, the body sends a larger than normal amount of acetaminophen to be detoxified by a pathway called cytochrome p450 2E1.
  • The problem with this pathway is that it leads to excessive production of N-acetyl-p-benzoquinone imine (NAPQI), a very toxic metabolite.
  • NAPQI is dangerous because it depletes glutathione which then reduces the body’s ability to detoxify a host of toxic chemicals in the environment.
  • In addition, the increase of NAPQI creates oxidative stress which leads to protein, lipid, and nucleic acid damage from free radicals. It also causes an increased rate of damage to mitochondrial and nuclear DNA.
  • NAPQI production has been found to be increased in humans at recommended dosages of acetaminophen and would be expected to be even higher in people with diminished sulfation capacity (as is often seen in autism).
  • BOTTOM LINE: Question your acetaminophen use.

By the way, acetaminophen is not just linked to the increase in autism. It has also been implicated in the rise in asthma. For more information, please read the following article  http://www.npr.org/blogs/health/2012/02/20/147002356/does-tylenol-worsen-asthma-for-kids.

For more information on Dr. Shaw’s original webinar about this topic, please read: http://ventography.wordpress.com/2012/01/14/acetaminophen-and-its-possible-connection-to-the-rise-in-autism/.

If you want to stay updated about news on this topic and future studies, please visit Dr. Shaw’s facebook page at: http://www.facebook.com/acetaminophenandautism.

 

UPDATE February 25, 2014: TYLENOL IS LINKED TO MORE THAN ADHD… WHAT THE MEDIA ISN’T TELLING YOU!


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MOM’S VITAMIN D LEVELS LINKED TO LANGUAGE PROBLEMS IN CHILDREN

Summary of New Study on Vitamin D Deficiency During Pregnancy:

  • Adequate vitamin D levels among pregnant women may be important for the optimal development of their baby.
  • Language difficulties increased twofold for children whose mothers had the lowest level of vitamin D, compared with children whose mothers had normal levels of vitamin D.
  • Vitamin D levels among pregnant women have decreased steadily over the past 20 years.
  • Dr. Michael F. Holick, a professor of medicine, physiology and biophysics at Boston University School of Medicine, noted that vitamin D deficiency increases the risk for preeclampsia (a condition marked by increased blood pressure and protein in the urine during pregnancy) and the need for a cesarean delivery.
  • Taking vitamin D supplements during pregnancy may relieve the problem.
  • Pregnant women should be increasing their vitamin D intake to levels recommended by the Endocrine Society, which is 1,500 to 2,000 IU a day.
  • Women who are deficient in vitamin D may need as much as 10,000 IU a day.

We both know that we had low levels of Vitamin D during our pregnancies with Annie and Brody. We wish we would have known this information. One more piece of the autism puzzle.

To read the full article, http://news.yahoo.com/moms-vitamin-d-levels-linked-language-problems-kids-170207935.html.

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