A Ventography!

Just two moms letting off some steam


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PREVENTING AUTISM – WHAT THE PARENTS SAY

preventing autism video

This is a video we found on Recovering Kids, a website owned by Regarding Caroline.

Recovering Kids asked the members of their group what can be done to stop the increasing numbers of children being diagnosed with autism. Their answers give valuable insight to anyone who is terrified of the epidemic that is changing the face of a generation of children…. currently one in every 50 children is affected by autism.

We wish we would have had this advice before our children were born.

Do you have advice to add?

We’d love to hear from you – parents who are living with autism every day. We respect your opinions and have learned more from you than from our pediatricians. Please write to us and let us know your best advice. We would like to publish your responses to help other parents who are just beginning their journey with autism.


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DAN! – RETHINKING THE STATUS QUO

HEALING BRODY – PART 5

I had spent the last few years living in the land of denial and being bombarded by doctor excuses for Brody’s health issues. One day, my good friend Debbie, talked me into going to a DAN! conference. I thought “Why not? It will be fun to get away for two days and have some adult time.” Little did I know, my world was about to be turned right side up.

We sat down in a convention room and waited for the conference to begin. I don’t remember who the first speaker was, but I do remember one specific question, “How many of you in here have a child or grandchild with autism?” Debbie and I raised our hands and sheepishly looked around. Would we be the only ones? My mouth dropped. There were too many hands to count. There was an electrical charge and energy in the room. Debbie and I grabbed hands. We were not alone!

All of us in the room shared one thing in common – autism, and that we were starving for information.

As the day progressed, I became re-energized. The fight that had been sucked out of me over the years was returning. Autism was much more than a brain disorder (as I had been led to believe) and I had the ability to make drastic changes in Brody’s outcome. I felt like I regained some sense of control. DAN! encouraged parents to question the status quo thinking running rampant through much of the medical establishment.

DAN! validated many of my concerns that had been dismissed by the pediatricians. I was not crazy and there were underlying health issues contributing to my son’s autistic behaviors. Unexplained rashes, constant vile smelling diarrhea were not normal. It was time to get to the root of problems and not put on another band-aide.

DAN! changed the way I looked at Brody and autism, and gave me hope and a sense of belonging. It was the kick-start I needed to begin my journey to regain Brody’s health. I couldn’t wait to get home. Brody was going on the Gluten/Casein Free Diet ASAP. I wasn’t sure what to expect, but I was optimistic.

To read more Healing Brody click here.


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A TRIBUTE

Sometimes we get so self-absorbed on our quests to recover Annie and Brody, we forget to appreciate how hard they are fighting alongside us.

We forget that things are twice as hard for them, take them twice as long, and ten times the effort.

We forget that they manage to smile and enjoy being kids even if they feel sick or have pain.

We forget that the littlest things can cause them anxiety, but yet they manage to try new experiences every day.

We forget that they rarely complain about the weird food and all the supplements.

We forget that they don’t get upset about our constant coaching and correction of their speech, language, and social skills.

We forget that they are not upset by our constant hovering even though they are getting older and may want privacy and independence from us.

We forget that our kids don’t gripe about hardly ever getting “down time” or time to just “be.”

But… we will not forget to recognize our children for the fighters they are. They are “tough as nails” and we’d be nowhere without them.

Thank you Annie and Brody, our precious gifts from heaven, for teaching us real love and making us better people.



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SIGNIFICANT GAINS PAST AGE FIVE ARE POSSIBLE

ANNIE’S STORY – PART ELEVEN OF TWELVE

Annie was now five years old and I had just come out of the worst depression of my life. I decided to try sequential homeopathy as a last-ditch effort to recover Annie. I wasn’t expecting it to work. I couldn’t handle getting my hopes up only to be crushed once again. I fully intended to give up on my quest to recover Annie if sequential homeopathy was another giant disappointment.

We started homeopathy while Leah was away for the summer. While she was gone, I had seen some amazing things. Most noteworthy, Annie was becoming conversational. Prior to homeopathy, Annie could speak in sentences, but only regarding things she cared about or wanted. There was no back and forth conversation… she was just blabbering. She couldn’t ask or answer any questions.

After two months of homeopathy, she was doing both. I could actually have a conversation with my daughter about her day, what she likes, what she doesn’t like, what she was thinking about… it was a dream come true. Also, Annie’s mood improved drastically. She seemed like the happy, smiley, care-free child she was prior to her regression.

My parents noticed the change. Her school noticed the change. Our neighbors noticed the change. But I didn’t want to tell Leah for two reasons. First, because I didn’t know if these changes would last. Second, because I knew Leah was the perfect person to tell me the truth. She would tell me if Annie really had changed because she hadn’t seen Annie in two months. Maybe everyone else was just trying to make me feel better.

Leah came home and we scheduled a time for the kids to play. I held my breath and didn’t say a word to Leah about the changes I had noticed in Annie. To my delight, Leah confirmed the exact same things I was seeing. I could tell by the look on her face and the tone of her voice, she was shocked and impressed. Annie even had a rudimentary conversation with her.

I was experiencing another “defining moment” with autism. I could feel that something was different this time… maybe this was actually going to work. I allowed myself to get my hopes up… just a little.

In another prayer session, craniosacral therapy popped into my head. I heard about craniosacral many years earlier, but had dismissed it immediately because it involves therapists laying their hands on the child in order to clear energy blockages. With Annie’s sensory issues, I figured my mom and I would have to hold her down while the therapists “did their thing.” I just wasn’t up for another “scream fest” so I decided not to pursue it. But now, because of homeopathy, her emotions were under better control. Maybe it was worth a try?

Our first craniosacral session was for two consecutive hours. I figured it was going to be a nightmare. I was blown away when Annie climbed right up on the massage table and cooperated with the therapists, without even making a peep of protest. For the first time since she regressed, I could see a look of relaxation and peace on Annie’s face. She loved it. In fact, when our two hours were up, that’s when Annie got upset… she didn’t want to leave. Luckily, we were there for treatments the entire week so we were able to get her to leave without too much of a scene.

After our week of treatments, we started noticing several changes. The most dramatic was that Annie’s sensory issues were drastically improved. She no longer covered her ears, she didn’t seem sensitive to light anymore, and she was no longer as picky about the clothing she wore.

Three months later, we went back for three more days of craniosacral treatments. Prior to the treatments, Annie could not write a thing, she hated drawing, and despised coloring. She was six years old at this point, so she should have been writing and enjoying arts and crafts. After the treatments, Annie came home and started drawing elaborate stick figure drawings that were very detailed. She even drew animals and scenes. All she wanted to do was draw. She was a drawing maniac for a week and then it happened… she started writing.

She wrote story after story. She probably had all these pent-up stories in her head that she was unable to express and now, she was thrilled that she could release them. Her handwriting was sloppy and hard to read and her drawings were not age-appropriate, but we couldn’t have cared less. We were thrilled that she actually liked drawing and writing!

Every month, we did more homeopathic “clears” where we gave her remedies to clear various traumas Annie had suffered during her life. Every month we saw more incredible gains.

After two years of steady monthly improvements with homeopathy: Annie’s OCD and anxiety went away, her verbal stimming became rare, she no longer got sick every other week, her coloring looked better (she looked healthier), the diarrhea went away, she told me she was no longer in pain, Annie was on target academically (except handwriting), she managed to make a few friends, and she was sleeping through the night (AMEN).

I can’t explain homeopathy as well as I’d like to. Most people in the USA think it is crazy or simply the “placebo effect.” However, it has actually been around longer than western medicine and is very common (accepted) in places like Europe. Homeopathy believes that “like cures like” (Sound familiar? Think vaccines.) and that the body has the ability to heal itself if that healing force is not suppressed (like it often is with autism).

All I can tell you is that sequential homeopathy and craniosacral resulted in giant improvements for my daughter. They are both energy therapies, so I believe they compliment each other and may have a synergistic effect. Will they work for your child? I wish I knew. That’s the frustrating thing about autism. As we all know, a one size fits all approach does not exist. However, I believe homeopathy and craniosacral therapy are safer than some of the other interventions out there and they likely won’t hurt your child. So maybe, they are worth a try.

You are now caught up to where Annie is today. She is, for the most part, a happy, well-adjusted 7-year-old.

Do I consider Annie fully recovered from autism? No. Not yet. But I have faith that she will be.

What is my definition of recovery? When Annie can attend a “regular” school (without a para or any other supports) and be indistinguishable from her neurotypical peers. I believe this goal will be achievable for Annie in the next 2-3 years. I’ll keep you posted as our story unfolds.

One more post to follow with my thoughts and takeaways from Annie’s story.

To be continued…

For parts 1 – 11 of Annie’s story, http://ventography.wordpress.com/category/annies-story/

For more about homeopathy, http://www.healthinducedautism.com/homeopathy.html

For more about craniosacral, http://www.healthinducedautism.com/craniosacral-osteopathic-manipulative-therapy.html


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MOMMY MELTDOWN

ANNIE’S STORY – PART TEN OF TWELVE

“It’s always darkest before the dawn.”

Annie had just recovered from a debilitating case of hives when her fifth birthday rolled around. What should have been a joyous occasion for celebration, felt like a funeral to me. I could not stop myself from spiraling into another depression. I lashed out at everyone around me.

Being a goal-oriented person, I had set a deadline that Annie would be recovered by five. When we didn’t make the deadline, I fell apart. Instead of focusing on the positive gains she had made, all I could see was how far we still had to go. I contemplated taking care of Annie for the rest of my life and really questioned whether I had the strength to do it. Worse yet, what if I died? Who would take care of Annie then?

I was resentful. I felt like so much had been taken from me. I was jealous of my friends and family with neurotypical children. It was hard for me to even be around them.

Nobody could console me. I just wanted to be left alone.

I thought about giving up on Annie’s recovery. I was so tired – physically, mentally, and emotionally. I felt so alone. I wondered if it would be better to just accept my fate. Maybe the skeptics were right about autism recovery – I was just wasting my time and money.

This was my third “defining moment” with autism. I hit rock bottom. I stopped obsessively googling autism treatments. I stopped reading recovery stories. I stopped making doctor appointments. I stopped ordering new supplements. I stopped questioning my friends about what was working for their children.

I was still.

I knew I had to “get it together” because, after all, I’m a parent. I didn’t know what else to do, so I turned to prayer. I prayed my brains out for guidance from God.  I prayed like I had never prayed in my life. During one of my prayer times, I heard that voice in my head say,”What about homeopathy?”

I had stumbled upon homeopathy several years earlier in my research, but had dismissed it. Never the less, I went to my computer and googled autism and homeopathy. This time, I read about a completely different approach to homeopathy called sequential homeopathy.

I believe Annie regressed into autism because of a combination of many factors and therefore, I believe it will take a combination of lots of things to heal her. This is what sequential homeopathy believes too. Also, with sequential homeopathy, you work backwards throughout your child’s life to clear all of his/her various health assaults. You clear the most recent health assaults all the way back to assaults at birth. Every month, you are peeling away another layer and gently getting to the root of the problem. This is my very simplistic, “mom-ified” version of sequential homeopathy.

It made sense to me. I had come to believe that the reason Annie kept having mini regressions, as I tried to heal her biomedically, was because she would experience too much detox, too fast. Her fragile system could not handle so many toxins at once and then her behavior, academics, and language would suffer. Sequential homeopathy believes in supporting the major organs involved in detox and going very slowly so that this won’t be as likely to happen.

I made an appointment with a center renowned for its work with sequential homeopathy and autism. I told Leah that if this didn’t help Annie, I was going to throw in the towel. She would have to shoot for recovery without me.

To be honest, I wasn’t expecting much. I no longer had the energy to get my hopes up, only to be smashed to bits. Sequential homeopathy was my last resort.

To be continued…

For Parts 1 – 9 of Annie’s Storyhttp://ventography.wordpress.com/category/annies-story/


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TICK TOCK GOES THE AUTISM CLOCK

ANNIE’S STORY – PART NINE OF TWELVE

I spent Annie’s fourth year of life basically banging my head against a brick wall. In an effort to recover her, I tried anything and everything I felt was safe. But everything I tried led to one step forward and two steps back. I was tired of the emotional roller coaster. I was battered, bruised, and running on pure adrenaline.

I felt more pressure than ever because she was fast approaching her fifth birthday. In every recovery story I had read, the child had recovered by the time he/she was five. I felt like a noose was tightening around my neck. I felt I was running out of time. I truly feared that if I didn’t help her recover by the time she was five, it was all over for us. That clock, ticking over my head, got louder and louder. It was all I could hear and focus on some days… TICK. TOCK. TICK. TOCK. It was deafening.

But then I got a call from a DAN! doctor that had a two year waiting list. I had finally earned my spot. Immediately, I made an appointment so that I could seek a second opinion.

The new doctor told me that Annie had severe metabolic acidosis which was likely leading to her aggression and tantrums. She told me that Annie literally felt like her gut was being burned by acid all day and all night. I probably wouldn’t have been so pleasant either if I felt like my insides were on fire! I felt so badly that I didn’t realize this sooner, like I had let Annie down. I figured some prescription drug would be needed to solve the problem, but was blown away when the doctor told me the cure. She told me to put 1/4 teaspoon of aluminum free baking soda in 8 ounces of water and have Annie sip on it all day. The baking soda would neutralize the acid in Annie’s system. You could have knocked me over with a feather. Almost immediately, the baking soda lessened her tantrums and aggression. It wasn’t gone, but it was so much better.

The doctor also told me about a new way to rid the body of metals and toxins, without the possible dangers and side effects of chelation. It was called OSR #1 and it was classified as an antioxidant. I was so excited. She told me I had to wait a few months to try it so that Annie had time to recover from the metabolic acidosis.

Fast forward a few months and lab tests revealed Annie was finally healthy enough to begin OSR. We started with just a tiny sprinkle. Within one month, Annie went from only speaking one  or two words at a time (unprompted) to speaking in sentences much of the time. For example, prior to OSR, Annie would say “Daddy basketball” if she wanted to play basketball. After OSR, she said, “Daddy, I want to play basketball with you.”

We were afraid to get our hopes up, but OSR really seemed to be working miracles. The doctor told us to gradually start increasing the amount of OSR to work up to a whole capsule. I said to myself. “This is it! This was going to be the magic bullet and Annie would be recovered by the all important fifth birthday.” I was riding high.

Once Annie was on half a capsule of OSR, she broke out in hives. The hives were all over her body – in her scalp, between her toes, EVERYWHERE! She itched so badly that she made herself bleed. She was covered in scabs. She couldn’t eat or sleep. She stopped talking and became extremely aggressive, once again. She looked at me with a look I will never forget. Her eyes seemed to be saying, “Mommy – why aren’t you helping me?” It broke my heart.

The doctor said she must have an allergy to sulfur (OSR was sulfur based). They had seen this reaction in a few other children, although it was extremely rare. She told me to stop the OSR all together for a month. It took the whole month for the hives to disappear. And even once they were gone, Annie had purple scars all over her body from the scabs.

I was terrified to re-start the OSR. The doctor told me to give her just a sprinkle, like we had done in the beginning, and said that she’d have to remain on that dose indefinitely. She assured me that some children simply didn’t need a whole capsule to detox, but I had my doubts. I started her back on the sprinkle. Her hives did not return, but luckily her language did. She was back to speaking in sentences most of the time.

Even though her language and tantrums were better, Annie was far from being recovered.

And then it happened… her fifth birthday hit. I was emotionally unprepared for what came next.

To be continued…

For parts 1-8 of Annie’s story, http://ventography.wordpress.com/category/annies-story/

For more on the Biomedical Treatment approach to autism, http://www.healthinducedautism.com/biomedical.html


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TWO MOMS ON A CRUSADE FOR ANSWERS TO THE QUESTIONS THAT HAUNT US

What are the questions that keep us up at night?  Here they are:

  • Why did this happen to our children? Was it something we did or didn’t do? Was it something in their environment that we could have controlled?
  • How can we help our children recover or at least live life to their fullest potential?
  • What will happen to this generation of sick children as they grow into adults?
  • How do we prevent this from happening to future generations… to our grandchildren?
  • How can we ever die? Who will take care of our children?
  • Why does it seem that so few people and organizations are interested in getting to the root cause of the autism epidemic? Why doesn’t it get the same amount of tv time and funding as other childhood diseases that are not nearly as prolific?
  • What are these “canaries in the coal mine” trying to tell us as a society and why is nobody listening?

These are the questions we’re often too afraid to verbalize because it takes us to a place of such fear and anxiety that it’s hard to continue on with daily life and be the moms we are called to be. But we’re going to discuss them because we need your help. If we (parents who are struggling to find answers for their children) banded together to demand answers and share our knowledge, we know we could move mountains.

Please join our crusade for answers. Forward this post to your friends and ask them to join with us too.

For more on our crusade for answers, please visit our facebook page and perhaps give us a like: https://www.facebook.com/healthinducedautism

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