A Ventography!

Just two moms letting off some steam


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AUTISM RECOVERY CAN FEEL LIKE BANGING YOUR HEAD ON A BRICK WALL

ANNIE’S STORY – PART EIGHT OF TWELVE

To recap, Annie had just gone through a second regression from too much hyperbaric oxygen therapy and I had hit another emotional low. I knew our Defeat Autism Now (DAN!) doctor didn’t have much more to offer us since I was too afraid to try most of his suggestions.

I felt I had two choices – give up on recovering Annie or strike out on my own. I decided to take some time off from the DAN! stuff and to go it alone.

A lot of the moms I talked with on the chat boards had experienced success with Nutrigenomics. To me, it made sense to customize Annie’s supplementation based on her unique genetic mutations, so I decided to give it a try. I sent in some of Annie’s blood and anxiously awaited the return of her Nutrigenomic panel results. This test was designed to tell me what mutations Annie has in the genes related to the methylation pathway and how to support those mutated genes with supplementation. Supporting the methylation pathway leads to better brain health, immune support, nerve health, and energy.

When I got Annie’s results I was relieved and yet, strangely disappointed. I was relieved because Annie did not have any double mutations (mutations inherited from both her father and I). In other words, all of her genes were functioning to some degree. However, she did have several single mutations (or genes that were not functioning optimally). I was disappointed because the supplement plan to support single mutations was confusing and ambiguous… sometimes you need to support the gene and sometimes supplementing it could make it worse. I was back in the land of guessing and experimentation.

The plan required giving lots and lots of supplements in low doses. You were advised to start each new supplement several days (if not weeks) apart so you know if each particular supplement agrees with your child. The idea being that if adding the new supplement was the only thing you changed for your child in a given period of time, then you can safely attribute any positive/negative changes to that particular supplement.

Annie’s tantrums seemed better after starting the first couple supplements (about a month on the plan). I was so excited that I stupidly stopped waiting the advised number of days before adding new supplements. Before I knew it, Annie was on over 20 different supplements, she had gone crazy, and I had no idea what was causing it. I had to start over.

I took her off all the supplements and began again, but I quickly realized that this plan wasn’t for me. It was too confusing to try to figure it out without being able to talk with someone. I think if Annie had double mutations where supplementation is clearly needed, this plan would have worked better for me. I was back on the hunt for a new direction. HEAD BANG NUMBER ONE.

I had read a lot about Linus Pauling’s work with Vitamin C – that it can chelate, kill viruses, build the immune system, etc. So, I decided to give high dose oral Vitamin C a try. Annie’s diarrhea got worse, she got more stimmy, and became ridiculously hyper and aggressive. I called my DAN! doctor to ask for help and he informed me that the reason he does not advise high dose Vitamin C therapy is because most forms of Vitamin C are derived from corn, and many children with autism have severe corn allergies. Well, Annie is one of those children with a major allergy to corn – mystery solved. HEAD BANG NUMBER TWO.

Our doctor told us he could recommend a Vitamin C derived from Cassava, but he advised against doing high dose oral therapy. Instead, he suggested I try intravenous (IV) Vitamin C therapy. I decided to give it a try. To this day, I think the IV Vitamin C therapy might have worked, but getting Annie to comply with the IVs was just too stressful. During our first IV treatment, it took 3 people to hold Annie down (me, my mom and a nurse) and another nurse to administer the IV. Annie only spoke 1 or 2 words at a time back then and yet, she managed to mutter, “Mommy make it stop. I promise I’ll be good.” My heart broke. I knew at that moment I couldn’t torture her on a weekly basis. I went back to the drawing board. HEAD BANG NUMBER THREE.

Her DAN! doctor suggested we work on improving Annie’s sleep. Ever since we tried hyperbaric, her melatonin wasn’t cutting it anymore. She was pretty much nocturnal (only she didn’t sleep during the day either). Annie’s doctor suggested a “sleep cocktail” for bedtime – a mixture of GABA, Magnesium, Melatonin, and 5HTP. I had to give Annie high doses of all of them to finally get her to sleep. And month after month, the effects would seem to wear off and I had to keep upping the doses. For an explanation of what I believe caused this problem, please read  http://ventography.wordpress.com/2011/10/19/lessons-learned-part-three/.

What I took away from all of this was that I was done with high dose supplements for good. In my opinion, there is a reason the saying “All things in moderation,” has lasted throughout the ages. I needed another new game plan. HEAD BANG NUMBER FOUR.

About this time, Leah had put Brody on the Specific Carbohydrate Diet (SCD) and was experiencing amazing results! Brody had miraculously started talking up a storm right in front of my eyes. So, I figured maybe SCD would be the missing link for Annie too. I started her on the diet right away. But, the diet didn’t seem to help Annie. In fact, she lost weight and seemed to get sicker and even grouchier. I was beyond upset. Nothing seemed to be working. HEAD BANG NUMBER FIVE.

Was someone trying to finish me off? Was God trying to tell me to give up on healing my daughter? Should I just accept that this was the hand I was dealt and stop putting every last drop of effort I had into recovering Annie? But how could I ignore her real and devastating health symptoms? I knew she was in a state of constant pain and anxiety. How could I look the other way?

Right as I was reaching the point of giving up, I got a call telling me that I had received an appointment with a DAN! doctor who had a 2 year waiting list. I truly felt like I had won the lottery! While I still had tremendous respect for our original DAN! doctor, I felt I needed a second opinion. So, I made an appointment with the new doctor right away.

I learned 2 key things from the new Doctor. One, Annie had severe metabolic acidosis. Two, there was a new chelator I could try that was not a drug, it was an antioxidant, called OSR.  Once again, my hope for Annie’s recovery was renewed.

To be continued…

For Parts 1 – 7 of Annie’s Story http://ventography.wordpress.com/category/annies-story/

For more information on Nutrigenomics http://www.healthinducedautism.com/nutrigenomic-dna-testing.html

For more information on the Specific Carbohydrate Diet http://www.healthinducedautism.com/specific-carbohydrate-diet-scd-information.html

For more information on Methylation http://www.healthinducedautism.com/methylation.html


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HYPERBARIC OXYGEN THERAPY – ANNIE’S SECOND REGRESSION

ANNIE’S STORY – PART SEVEN OF TWELVE

After trying and failing at several Defeat Autism Now (DAN!) interventions, I thought Hyperbaric Oxygen Therapy (HBOT) was going to be our saving grace. My husband and I gambled big… we drained our savings account and bought a home unit.

We were told by our DAN! doctor to go in the chamber 60 minutes a day, every day, for 2 months. At this time, Annie spent a lot of her days running aimlessly around our house. In addition, she flipped out if she was confined in any way. So, I wasn’t thinking she would enjoy hopping in our coffin sized HBOT chamber very much.

I admit, getting Annie in the chamber the first time wasn’t pleasant. However, after we completed the first session and she saw that it didn’t hurt and we weren’t going to be living in there forever, Annie loved it. In fact, she would crawl in the chamber multiple times a day. This was her way of telling me she wanted to do a session. I thought, “We’re on to something, this must feel good to her and it must be helping.”

We completed our 60 dives over 2 months. Then, we had a check in with our doctor to discuss results and do some tests to make sure Annie was healthy enough to continue treatments. I told the doctor that Annie did not have any increase in expressive (spoken) language as we were hoping for. However, she did make a big leap in receptive language. In other words, suddenly she could understand what we were saying to her. Prior to hyperbaric, Annie could only follow 1 or 2 step commands. But after our 60 dives, she could follow complex, multi-step commands. In addition, she seemed to be sleeping a little better. I was very encouraged.

After taking a month rest from hyperbaric, the doctor advised me to increase to 2 sessions a day (120 minutes a day). I truly believed that this was it – Annie’s recovery was on the horizon. But that was not the case.

After a few weeks of the increased treatments, “the wheels seemed to be coming off the tracks.” Annie’s bowel movements got worse. The diarrhea was back. The dark circles under her eyes got worse. Her stimmy-ness got worse. And most disappointing, her behavior got significantly worse. She went back to having several tantrums every day and became very aggressive. We were all “walking on eggshells” – never knowing why or when she was going to explode. It is also worth noting that Annie no longer asked to get in the chamber. In fact, she fought me about getting in. It became a daily battle.

One day, Leah and Brody came over right after we had finished a session. Leah told me that Annie’s eyes looked weird to her. Annie was staring off into space a lot (something she had never done prior to hyperbaric). Leah point-blank told me that she thought Annie was having mini-seizures and that she didn’t think we should be doing hyperbaric anymore.

I saw that Annie was regressing. I saw that my daughter did not want to do the treatments any more. I heard my closest friend tell me not to do the treatments anymore. And yet, I kept on going.  It wasn’t because we had spent our entire savings. The reason I kept on going was because I had believed, with my whole heart, that hyperbaric was going to be the intervention to finally heal Annie. I didn’t know what else I could try if I gave up on hyperbaric. To me, giving up on hyperbaric felt like giving up on Annie.

This is one of my biggest regrets now. I wish I had listened to the signals Annie was giving me a lot earlier. Just like she knew it was good for her in the beginning, she knew it was too much for her when we increased the number of dives. Our children have extraordinary inner wisdom and I wish that I would have paid attention, instead of clinging to my desperate hope.

We didn’t finish our last week of “double dives”. I had finally come to my senses. We stopped hyperbaric all together. Annie’s behavior got better, but it still wasn’t great. I was dealing with at least 1 tantrum per day instead of multiple tantrums every day. Annie did not lose her gains in receptive language, but her health was clearly worse as a result of too much hyperbaric. Annie was hardly sleeping at all.

I have come to believe that the reason everything went wrong when we increased the number of dives was because Annie’s yeast got worse and she experienced too much detox, too fast.

This was a real wake up call for me. I was mad at myself for hurting my daughter. I had no idea what my “next move” was going to be. I was really “down in the dumps.”

To be continued…

For Parts 1 – 6 of Annie’s Story go to http://ventography.wordpress.com/category/annies-story/

For more information on Hyperbaric Oxygen Therapy go to http://www.healthinducedautism.com/hyperbaric-oxygen-therapy-hbot.html


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LEAH AND MOLLY UNLEASHED

We escaped. We left the 20 mile radius we tend to “do life” in and went to the big city. We were Thelma and Louise – minus the crime spree. We left autism at the door. We were free!

But don’t think that freedom didn’t come at a price. We had to leave lunch and dinner ready to heat up, supplements ready-to-go, and instructions for every possible scenario.

Our agreed upon departure time was noon, however, I was ready to go by 9:30am. Molly – not so much, as she is chronically late. It was not for lack of enthusiasm, she just couldn’t find an outfit she felt was “big city shopping” worthy.

First stop – Kohl’s. Thanks Elizabeth for the great tip you gave us about the cute paisley dress! Unfortunately, they did not have it in our size. We failed miserably at finding stylish summer dresses. They were either too grandma, too fattifying, or too hoochie coochie.

So, we aborted our mission to find dresses as a replacement for our daily, unflattering, comfy, stretch pants and t-shirt ensembles. We decided to focus our efforts on make-up instead.

One little hiccup… how do you match make-up to blonde/pale orange hair? That’s right – I tried to fix my hair fiasco and walked away with shockingly orange hair. The cut is a million percent better, but the color is… well, a picture speaks a thousand words…

Not so pretty.

We headed for the Bobbi Brown section at Nordstrom’s. But were scared off by the sea of clown faced, Chuckie doll make-up artists beckoning us to their counters. We said, “Sayonara” and trekked across the mall to Sephora instead. The make-up artists in Sephora all looked like they had come back from a rave. We asked ourselves, “Are we out of touch? Where is the dewy, fresh-faced make-up we long for? Is it out of style? Why does it elude us so?”

As soon as these thoughts crossed our mind, we were accosted by a woman with flaming red hair and make-up to match, asking us to sit in the make-up chair for a consultation. I decided to go for it (Molly gave an evil cackle as I was the guinea pig). To our surprise, my make-up artist was pretty darn good. She listened and was patient and I walked away with an everyday make-up look I can be proud of. According to Molly, it makes my eyes “pop” and my face “glow from within” (minus the two “blemishes” on my cheek). Look how much fun we had in Sephora…

Molly’s turn. Molly is a fan of Bare Escentuals and insisted on going to their boutique for a consult on how to do eyes and lips. We had to wait for Molly’s appointment, so we decided to get a cup of tea to kill the time. We were shocked and dismayed when they told us the amount we owed for two measly cups of tea… we had to take out a second mortgage on our houses! Since when has tea become $5.00 a cup??

The make-up gal Molly was assigned to in Bare Escentuals looked like she was all of 13 years old. Molly requested a natural, every day look. However, she walked out sporting 10 pounds of very “un-natural” purple eyeshadow. We wondered if the girl has been formally diagnosed with MLD, “Make-up Lingo Dyslexia.”

Molly decided to risk the clown faced make up artists at Nordstrom’s because she had become obsessed with this picture which she saw at the Bobbi Brown make-up counter:

We don’t ask for much in life… was it too much to ask for our make-up to look like this… our definition of dewy, fresh-faced, 2012 make-up?

Back to Nordstrom’s we trotted. Molly got right in with the make-up artist. She asked the lady to re-create the look in the picture. However, on Molly, the eyeshadow did not look quite the same. On a twenty-something, the glitter looks pretty, but on a 30-something mom, the glitter was a little too disco. But the make-up artist did a similar look (minus the sparkles) and Molly was thrilled.

We learned a valuable lesson – don’t assume clowns can only do clown make-up. If we are ever allowed out of our cages again, we plan to make another appointment with this lady to learn additional make-up looks.

What a successful day. Both Molly and I left the mall feeling pretty, the closest we’ve felt to our pre-autism selves in a long, long time. We actually spent 6 six hours without thinking about or discussing autism, even once. We were refreshed.  We had a new pep in our step.

Molly walked in her house only to be greeted by her husband who said, “What’s up make up face?”

WHOMP WHOMP… feelings of prettiness flushed down the toilet. Maybe Molly should have gotten a matching hoochie coochie dress to go with her new “face” after all.

Up next: We’re starving… new diet is in jeopardy. Stay tuned for the continuing saga of “Recovering from Recovery.” -L&M

For more “New Year, New Us” posts and our ongoing quest to recover from recovery, go to: http://ventography.wordpress.com/category/new-year-new-us/.  How are you “recovering from recovery?” Please share with us your tips and suggestions.

A shout-out to  http://puzzledmommy.wordpress.com/ – we love https://www.birchbox.com/. Since we don’t get out much, we love having the alternative of the latest and greatest make-up products coming right to our door. Great find.

A shout out to Rob who had the dishwasher unloaded and Annie’s bed made when I got home. You’re the greatest. -Molly

L&M CONFESSIONAL: We know we are giant hypocrites. We just blogged about the toxic ingredients found in make-up. We had good intentions to find healthy, organic make-up. But once we saw the illustrious Bobbi Brown picture, it was all over for us. Our willpower was gone. We were a marketer’s dream. We fell for the promises made by that picture… that we too, could look like doe-eyed twenty year olds and we need poison make-up to do it. Please forgive us.


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MOLLY’S GUIDE ON HOW TO ANNOY YOUR DAN! DOCTOR

ANNIE’S STORY – PART SIX OF TWELVE

After Annie’s regression, I saw some encouraging gains from starting her on the Gluten Free Casein Free Diet (GF/CF) and some basic supplements. I had read all about the Defeat Autism Now (DAN!) protocol and was anxious to try it. I knew I was at the point where I needed professional help in order to get Annie to the “next level.” So, I found a DAN! doctor and made an appointment as soon as possible.

The doctor’s first step was to order tons of lab testing – blood, stool, urine, etc. The results confirmed what I already knew; Annie was a sick little girl!

Since Annie was already on the GF/CF Diet, her doctor wanted to begin by addressing her food allergies. According to the lab test, Annie was allergic (“sensitive”) to just about everything. Her doctor asked me to eliminate all the foods she was allergic to for 60 days. This was another drastic diet change. On top of eliminating gluten and casein, I no longer let Annie eat corn, soy, additives/preservatives, food coloring, chicken, potatoes, tomatoes, and numerous fruits.

I was overwhelmed. I had to learn to make everything from scratch. This was not easy for me since my idea of cooking was heating something in the microwave or thawing a frozen dinner. Annie seemed to hate everything I made. But after a period of trial and error, and a lot of help from my mom, I finally found new things she would eat. After 60 days on the elimination diet, Annie’s gut issues were significantly better and her language took another jump. Even though her doctor said I could add back in some of the foods Annie was allergic to, I decided to keep her on the diet. I didn’t want to do anything to cause more inflammation to her gut.

Next, the doctor wanted to attack Annie’s yeast (candida). He wrote us a prescription for Diflucan and I filled it right away. But once I had the pills, I was too scared to give them to Annie. I just stared at them every day, but couldn’t bring myself to give them to her.

This was the beginning of what Leah and I call my “supplement graveyard” – where supplements go to die. I have a cabinet, filled with supplements, that I once thought were going to be the “magic bullet” for Annie. But now, I have given up on them for various reasons and yet, I still can’t bring myself to throw them out. They are like my pets. I admit it – I am a supplement hoarder.

But back to Diflucan. From what I had read on the internet, Annie would have to be on and off of Diflucan (or other, even stronger prescription antifungals) for a long time in order to keep the yeast under control. To me, that just didn’t seem like it would be healthy for Annie in the long run. Since I had made a vow to follow my “mom instinct,” I opted not to give her the pills and explained my rationale to my doctor at my next appointment. I asked him if we could try natural antifungals instead. To his credit, he did not make fun of me or put me down and agreed to follow my intuition.

I tried probiotics, grapefruitseed extract, olive leaf extract, monolaurin, caprylic acid, uva ursi, and oregano oil. I tried them in various combinations and potencies. I rotated them. I tried everything to make them work. But the lab tests proved I was doing little more than keeping Annie’s candida in check. It hadn’t gotten worse, but it wasn’t any better either.

My doctor and I were at a stalemate on the yeast issue, so he moved on to other suggestions. He helped me add several key vitamins as indicated by Annie’s lab tests like: Vitamin D, Riboflavin, Magnesium Malate, Zinc, Co Q10, GABA, and Inositol. He told me to give Annie Melatonin and 5HTP to help with her sleep issues (they helped her fall asleep, but then she’d wake up at 2am ready to rock-and-roll). Lastly, he prescribed Methyl B12 shots to be given every 3 days.

From these additions, we saw more exciting progress. Annie’s vocabulary continued to grow, she was more aware, less stimmy, and her sensory issues were better. The most dramatic change came from the B12 shots. After a month of the shots, Annie was back to the social little girl she was before her regression. Once again, she marched right up to kids desperately trying to play and talk with them despite her limited language.

Next, my doctor spoke to us about chelation. He believed Annie could benefit from EDTA suppositories, since she had extraordinarily high levels of lead in her system (along with plenty of other heavy metals). I read about EDTA for myself and learned about the possibilities of chelation disturbing mineral balance in the body and/or the heavy metals doing additional damage to Annie’s brain on their way out of her body. The risks seemed too high, so I declined and asked my doctor if there was anything else we could try.

He suggested nebulized Glutathione as a way to improve my daughter’s immune system and perhaps, get the body to chelate itself. Well, that process was a nightmare. I had to wrestle Annie to the ground and try to hold a mask on a kid with sensory and anxiety issues! Not fun. And on top of that, it made her horribly hyper and stimmy. I wanted to try oral or topical Glutathione next, but the doctor informed me that they often lead to a yeast outbreak so, I gave up on Glutathione altogether.

Our doctor, bless his heart, was still willing to work with me despite all of my neuroticism. His next suggestion was the Hyperbaric Oxygen Chamber. Once again, I did my homework. But this time, I had a good feeling about it. For some reason, it made sense to me. I felt like inflammation and lack of blood supply to the brain were at the core of Annie’s issues and it seemed logical to me that hyperbaric could really help. I was beyond excited. We drained our savings in order to buy a home hyperbaric chamber. I could not wait to get started. I was fully expecting a miracle.

To be continued…

NOTE: I want to make sure that nobody thinks I am bashing DAN! doctors or the DAN! protocol. The DAN! doctors I’ve encountered are amazing human beings who truly want to help children with autism (in fact most of them have children with autism themselves). I know the DAN! protocol has recovered or improved the lives of many children and families struggling with autism. For Annie, I believe the DAN! interventions we did improved her health dramatically and laid the foundation for what was to come.

FOR PARTS 1-5 of ANNIE’S STORY: http://ventography.wordpress.com/category/annies-story/

For information on:

DAN! protocol: http://www.healthinducedautism.com/overview-of-dan-approach.html

Elimination diets: http://www.healthinducedautism.com/elimination-diet-allergy-diet-information.html

Allergy therapy: http://www.healthinducedautism.com/allergy-therapy.html

Candida treatment: http://www.healthinducedautism.com/candida-yeast.html


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GETTING OUR GROOVE BACK ON – MOLLY AND LEAH STYLE!

MOLLY AND LEAH 2012 VERSION

In January, we made the bold decision to “recover from recovery” and reclaim our old selves.

We were in a rut and utterly exhausted from putting so much time and effort into getting our children healthier. We were slowly lulled into apathy. First, we gained some weight. Then, we no longer felt like getting dressed up, nor did we have the money to keep up with the latest fashion trends. Then, because we looked so sloppy, we were too embarrassed to go to the hoity toity hair salons that could give us a chic haircut. Then, to add insult to injury, we even stopped putting on make up. We had spiraled out of control.

Well, no more… we are returning with a vengeance (but a snail’s pace)! Meet Molly and Leah – the 2012 version.

We have kept our promise to make time for exercise. We tried running, but our bladders did not cooperate. Then, we moved to fast walking but found that our gabbing prevented us from keeping up our pace. Next, we tried doing yoga DVDs at home. We thought yoga was supposed to be peaceful and relaxing. Instead, we found it to be a torture session and we hated every minute of it. So we moved on to Pilates. We now have 2 Pilates DVDs that we enjoy doing. They are helping us tone up and we find them to be stress-relieving. Problem solved.

We knew exercise alone would not help us lose the weight. So, we made changes to our diet as well. If we could put so much time and effort into the health of our children, why not us? We tried to do the South Beach Diet, but of course, we decided we know better. We tweaked it to be South Beach “L&M style.” Even though we are not following every detail of the South Beach diet, we are proud of ourselves. We are eating healthier than ever and we are sticking to the game plan. We eat similarly to our children now. Sugar and processed foods are no longer in our diet and we are eating more vegetables than ever. Yay for us!

But maybe South Beach “L&M Style” is not as great as we think because the other day, when Leah asked Tom (her husband) if she looked any thinner, he remarked, “Yes – your shoulders look thinner.” Just what every gal longs to hear from her husband after starving and exercising for weeks!

Our diet and exercise plans were going well, so we decided to tackle our hair issues next. We had been on the hunt for a decent stylist for 2 years. Then, one day, I thought I had struck gold. I called Leah to tell her about my award-winning hair experience. I pressured her to make an appointment immediately. Two days later, Leah found herself in the stylist’s chair but sadly, she didn’t have the same experience. Things went bad fast. An hour appointment turned into a three-hour, whoopsie-doo, salon owner must fix, we feel so bad about your haircut, the cut’s on us visit. Leah left with a Dorothy Hamill cut in the front and a 1980s Salt n Pepa haircut in the back. Not the haircut that dreams are made of.

Our kryptonite remains workout/comfy pants. Our excuse… bloggers need to be comfortable. We cannot be expected to be creative in skinny jeans.

Next on our agenda – fix Leah’s hair disaster, throw out 10-year-old make-up, and learn how to put on dewy, fresh-faced, 2012 makeup. We’ll keep you posted.

Anyone want to join us in “recovering from recovery?”

-L & M

P.S. – WANTED: the perfect shade of lip gloss for blondes… all suggestions welcome.

For other “New Year, New Us” posts go to: http://ventography.wordpress.com/category/new-year-new-us/


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SUPPLEMENTS – OUR NEW NORMAL

 

ANNIE’S STORY – PART FIVE OF TWELVE

The Gluten Free Casein Free Diet turned the lights back on for Annie, so I knew I had to keep going. Next up, supplements.

I decided to begin giving Annie a multi vitamin, enzymes, probiotics, and fish oil (EPA/DHA). After I pain stakingly made my supplement concoction, Annie would give it a sniff and spit it all over me as soon as the first few drops would hit her lips. My hands, my clothes, and my whole house smelled like rotting fish. I thought, “I can’t live like this.” But again, the voice in my head told me to keep going.

Even though I didn’t think she could understand me, I told her the supplements were not a choice. It was obvious, from looking at her, that she wasn’t getting the nutrients she needed from her food.  She was malnourished from all the diarrhea. It was “do or die” time. I knew if I let her get away with refusing the supplements now, she would never take them. I explained I was giving her these things to stop her diarrhea and to help her feel better. I tried again to give the supplements and she went to spit them out, again. So, this time, I closed her mouth and held it until she swallowed. She looked at me like I was the meanest mother who ever lived. But you know what? She looked at me!

My mom and I went through several days of holding Annie to get her to take the supplements. Any time I contemplated giving up, I thought about parents who have to hold their children down for chemo or radiation… they don’t want to do it, it hurts them to see their child in pain, but they know it’s what is best for their child. If they manage to help their child deal with all sorts of needles and scary equipment, I could certainly get my child to take some vitamins! After a week, Annie gave in and realized this was simply our new way of life and it wasn’t worth the energy to fight it. I breathed a huge sigh of relief.

I had written down every word Annie ever said before she regressed and to my surprise…within a few weeks of Annie taking the supplements, she had all those words back plus a few more. I realize now how lucky this was since I’ve had plenty of friends and acquaintances who’ve tried supplements with few gains. Supplements were not a miracle cure for Annie… we still had to deal with diarrhea, dark circles, rashes, toe walking, motor deficits, social deficits, language deficits, and sensory issues up the ying yang. But I was encouraged never the less.

Time to take this to the next level and get some professional help. DAN! doctors here we come.

To be continued…

For Parts 1-4 of Annie’s Story: http://ventography.wordpress.com/category/annies-story/

For more information on supplements: http://www.healthinducedautism.com/a—d1.html

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