A Ventography!

Just two moms letting off some steam

THE AUTISM RECOVERY JOURNEY BEGINS

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ANNIE’S STORY – PART FOUR OF TWELVE

After Annie’s regression, I spent three months being held hostage by depression. I spent my days crying and praying Annie would come back to me to no avail.

On her second birthday, something made me “snap out of it.” I started hearing a loud clock, ticking over my head, reminding me I had no time to waste (this clock still plagues me to this day).

I was ready to take action. If early intervention was key, I was ready to intervene. I was a computer researching madwoman.

One day, while reading about therapy for autism, I stumbled on the words:

Autism – Recovery is Possible.

This was, for me, another defining autism moment. Those four words gave me the hope I had been missing for the last several months. I had never heard children could recover from autism, let alone did I know anything about how health relates to autism. My brain was on fire with excitement. I did not leave my computer for the next week. I read about special diets, supplements, chelation, etc. until I thought my eyes would fall out.

“Sign me up; where should I start?” I asked myself. The Gluten Free Casein Free (GF/CF) diet seemed pretty low risk. I called my mom to ask her what she thought. She thought it couldn’t hurt, so I immediately called my husband and asked him to meet me at Whole Foods Market (even though it was 8pm). I had him watch Annie so that I could concentrate on buying a whole new array of foods.

I made Annie go GF/CF cold turkey and she was not pleased. Prior to the diet change, she lived on cheese and pizza. Annie went on a hunger strike and I contemplated throwing in the towel, but something told me to keep going… I had to at least give it two weeks. Prior to the diet, Annie walked with her head down and arms out to the side like a robot, making strange “gunk-gunk” noises all day long. Her noises were like nails on a chalkboard to me.

After 2 weeks of the GF/CF diet, it was like a fog had been lifted for Annie! She actually looked up for the first time in months. She even looked in my eyes occasionally. I felt like she was aware of my presence again and she cared whether or not I was around. She started using a few gestures and even a word here and there to communicate with us.

Although the GF/CF diet certainly wasn’t the dramatic cure for Annie that I read about on the internet, her subtle improvements were enough to keep me going. I knew I was on the right path with the diet, but I needed to keep adding more building blocks.

Up next…supplements. I was off to the races!

To be continued…


Annie’s story Part 1 https://ventography.wordpress.com/2012/02/02/the-super-nanny-episode-that-changed-my-life/

Annie’s Story Part 2 https://ventography.wordpress.com/2012/02/08/the-prequel/

Annie’s Story Part 3 https://ventography.wordpress.com/2012/02/14/the-straw-that-broke-the-camels-back-annies-regression/

For more information on the GF/CF Diet go to http://www.healthinducedautism.com/gluten-freecasein-free-gfcf-diet.html.

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Author: A Ventography!

A Ventography is about: 1. Encouraging and empathizing with other parents on the autism spectrum. 2. Recycling and simplifying information on the latest autism news and health and diet tips. 3. Asking thought provoking questions designed to make us rethink what we've been told about autism. 4. Helping connect the dots that show, in some cases, autism is more than a brain disorder. 5. Challenging parents to rethink what they've been told, refuse the status quo, and escape the whirlwind of confusion.

4 thoughts on “THE AUTISM RECOVERY JOURNEY BEGINS

  1. We found the insisting having Aiden tested for food allergies & then finding out he had some severe ones and eliminating them made a huge difference for him. Attention during speech and OT therapy greatly improved, the meltdowns were less frequent, it’s amazing. We have had a few times where he has had corn & let me tell you those weeks of detoxing him again were enough to make me a believer all over again.

    I would like to try the GF/CF but getting use to eliminating corn, oats, shrimp & fish were enough of a start. It’s been about seven months now, so we may be starting the GF/CF soon.

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    • I agree – Annie also had tons of food allergies and eliminating those foods improved her gut health, language, and awareness. Corn is EVIL! Annie goes nuts (hyper and aggressive) if she has corn. GF/CF is a huge sacrifice and lifestyle change, but it may be worth it. I am glad you are doing things one step at a time…that’s the only way to survive “the marathon” of autism recovery. Thanks for sharing your experience. I love hearing about what works for other moms! -Molly

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  2. The diet made a big difference for our son when he was younger. It reduced his rages and hyper activity

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    • I think Annie will be GF/CF for the rest of her life. I don’t think her damaged gut can handle gluten or casein. That’s so great that you saw improvement in rages and hyperactivity for your son. I wish I would have seen that! But still, the changes I did see were enough to make me a believer. Thanks for reading. -Molly

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