We thought this was a great post about reflecting on autism after living it for 16 years. The author gives an honest look at what it’s really like to deal with autism.
By Holly Bortfeld
My son Max was diagnosed with autism 16 years ago today, May 4, 1998. I have been mulling around in my head for a few weeks how I wanted to mark this anniversary of autism entering our lives and had drafted a blog but I didn’t like it. I kept poking at it and it didn’t get better. Just sadder. More bitter.
I was focusing on “lessons learned” in the autism community and frankly, it was just depressing. Little has changed for the positive, many things have gotten worse. Incidence has risen, funding has gone down, there is still a media blackout of the reality of “real autism”, our government hasn’t done anything, waiting lists are longer, services are cut everywhere, and our kids are still neglected, abused, bullied, sick, wandering and dying. Parents are still broke, exhausted, marginalized, heartsick.
I thought I’d take a break to…
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