A Ventography!

Just two moms letting off some steam

16 years later

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We thought this was a great post about reflecting on autism after living it for 16 years. The author gives an honest look at what it’s really like to deal with autism.

Moving Autism Forward by Team TACA

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By Holly Bortfeld

My son Max was diagnosed with autism 16 years ago today, May 4, 1998. I have been mulling around in my head for a few weeks how I wanted to mark this anniversary of autism entering our lives and had drafted a blog but I didn’t like it. I kept poking at it and it didn’t get better. Just sadder. More bitter.

I was focusing on “lessons learned” in the autism community and frankly, it was just depressing. Little has changed for the positive, many things have gotten worse. Incidence has risen, funding has gone down, there is still a media blackout of the reality of “real autism”, our government hasn’t done anything, waiting lists are longer, services are cut everywhere, and our kids are still neglected, abused, bullied, sick, wandering and dying. Parents are still broke, exhausted, marginalized, heartsick.

I thought I’d take a break to…

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Author: A Ventography!

A Ventography is about: 1. Encouraging and empathizing with other parents on the autism spectrum. 2. Recycling and simplifying information on the latest autism news and health and diet tips. 3. Asking thought provoking questions designed to make us rethink what we've been told about autism. 4. Helping connect the dots that show, in some cases, autism is more than a brain disorder. 5. Challenging parents to rethink what they've been told, refuse the status quo, and escape the whirlwind of confusion.

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