A Ventography!

Just two moms letting off some steam


VAXXED- FROM COVER-UP TO CATASTROPHE

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“OH MY GOD. I CANNOT BELIEVE WE DID WHAT WE DID. BUT WE DID.”

– DR. WILLIAM THOMPSON, CDC SENIOR SCIENTIST & WHISTLEBLOWER

“In 2013, biologist Dr. Brian Hooker received a call from a Senior Scientist at the U.S. Centers for Disease Control and Prevention (CDC) who led the agency’s 2004 study on the Measles-Mumps-Rubella (MMR) vaccine and its link to autism.

The scientist, Dr. William Thompson, confessed that the CDC had omitted crucial data in their final report that revealed a causal relationship between the MMR vaccine and autism. Over several months, Dr. Hooker records the phone calls made to him by Dr. Thompson who provides the confidential data destroyed by his colleagues at the CDC.

Dr. Hooker enlists the help of Dr. Andrew Wakefield, the British gastroenterologist falsely accused of starting the anti-vax movement when he first reported in 1998 that the MMR vaccine may cause autism. In his ongoing effort to advocate for children’s health, Wakefield directs this documentary examining the evidence behind an appalling cover-up committed by the government agency charged with protecting the health of American citizens.

Interviews with pharmaceutical insiders, doctors, politicians, and parents of vaccine-injured children reveal an alarming deception that has contributed to the skyrocketing increase of autism and potentially the most catastrophic epidemic of our lifetime.”

VAXXED –FROM COVER-UP TO CATASTROPHE

 

This film is a documentary  about a cover-up. Please do not refuse to see the film because-

  1. You heard it is an “anti-vaccine”film.
  2. You read a negative review from a reviewer who has not even seen the film. 
  3. The media is slamming the film and the directors.

Please see the movie and form your own opinion. If you still disagree with what the movie has to say–that is your prerogative. I applaud you for being open minded enough to see it.

http://vaxxedthemovie.com

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PREVENTING AUTISM – WHAT THE PARENTS SAY

preventing autism video

This is a video we found on Recovering Kids, a website owned by Regarding Caroline.

Recovering Kids asked the members of their group what can be done to stop the increasing numbers of children being diagnosed with autism. Their answers give valuable insight to anyone who is terrified of the epidemic that is changing the face of a generation of children…. currently one in every 50 children is affected by autism.

We wish we would have had this advice before our children were born.

Do you have advice to add?

We’d love to hear from you – parents who are living with autism every day. We respect your opinions and have learned more from you than from our pediatricians. Please write to us and let us know your best advice. We would like to publish your responses to help other parents who are just beginning their journey with autism.


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TICK TOCK GOES THE AUTISM CLOCK

ANNIE’S STORY – PART NINE OF TWELVE

I spent Annie’s fourth year of life basically banging my head against a brick wall. In an effort to recover her, I tried anything and everything I felt was safe. But everything I tried led to one step forward and two steps back. I was tired of the emotional roller coaster. I was battered, bruised, and running on pure adrenaline.

I felt more pressure than ever because she was fast approaching her fifth birthday. In every recovery story I had read, the child had recovered by the time he/she was five. I felt like a noose was tightening around my neck. I felt I was running out of time. I truly feared that if I didn’t help her recover by the time she was five, it was all over for us. That clock, ticking over my head, got louder and louder. It was all I could hear and focus on some days… TICK. TOCK. TICK. TOCK. It was deafening.

But then I got a call from a DAN! doctor that had a two year waiting list. I had finally earned my spot. Immediately, I made an appointment so that I could seek a second opinion.

The new doctor told me that Annie had severe metabolic acidosis which was likely leading to her aggression and tantrums. She told me that Annie literally felt like her gut was being burned by acid all day and all night. I probably wouldn’t have been so pleasant either if I felt like my insides were on fire! I felt so badly that I didn’t realize this sooner, like I had let Annie down. I figured some prescription drug would be needed to solve the problem, but was blown away when the doctor told me the cure. She told me to put 1/4 teaspoon of aluminum free baking soda in 8 ounces of water and have Annie sip on it all day. The baking soda would neutralize the acid in Annie’s system. You could have knocked me over with a feather. Almost immediately, the baking soda lessened her tantrums and aggression. It wasn’t gone, but it was so much better.

The doctor also told me about a new way to rid the body of metals and toxins, without the possible dangers and side effects of chelation. It was called OSR #1 and it was classified as an antioxidant. I was so excited. She told me I had to wait a few months to try it so that Annie had time to recover from the metabolic acidosis.

Fast forward a few months and lab tests revealed Annie was finally healthy enough to begin OSR. We started with just a tiny sprinkle. Within one month, Annie went from only speaking one  or two words at a time (unprompted) to speaking in sentences much of the time. For example, prior to OSR, Annie would say “Daddy basketball” if she wanted to play basketball. After OSR, she said, “Daddy, I want to play basketball with you.”

We were afraid to get our hopes up, but OSR really seemed to be working miracles. The doctor told us to gradually start increasing the amount of OSR to work up to a whole capsule. I said to myself. “This is it! This was going to be the magic bullet and Annie would be recovered by the all important fifth birthday.” I was riding high.

Once Annie was on half a capsule of OSR, she broke out in hives. The hives were all over her body – in her scalp, between her toes, EVERYWHERE! She itched so badly that she made herself bleed. She was covered in scabs. She couldn’t eat or sleep. She stopped talking and became extremely aggressive, once again. She looked at me with a look I will never forget. Her eyes seemed to be saying, “Mommy – why aren’t you helping me?” It broke my heart.

The doctor said she must have an allergy to sulfur (OSR was sulfur based). They had seen this reaction in a few other children, although it was extremely rare. She told me to stop the OSR all together for a month. It took the whole month for the hives to disappear. And even once they were gone, Annie had purple scars all over her body from the scabs.

I was terrified to re-start the OSR. The doctor told me to give her just a sprinkle, like we had done in the beginning, and said that she’d have to remain on that dose indefinitely. She assured me that some children simply didn’t need a whole capsule to detox, but I had my doubts. I started her back on the sprinkle. Her hives did not return, but luckily her language did. She was back to speaking in sentences most of the time.

Even though her language and tantrums were better, Annie was far from being recovered.

And then it happened… her fifth birthday hit. I was emotionally unprepared for what came next.

To be continued…

For parts 1-8 of Annie’s story, https://ventography.wordpress.com/category/annies-story/

For more on the Biomedical Treatment approach to autism, http://www.healthinducedautism.com/biomedical.html


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AUTISM RECOVERY CAN FEEL LIKE BANGING YOUR HEAD ON A BRICK WALL

ANNIE’S STORY – PART EIGHT OF TWELVE

To recap, Annie had just gone through a second regression from too much hyperbaric oxygen therapy and I had hit another emotional low. I knew our Defeat Autism Now (DAN!) doctor didn’t have much more to offer us since I was too afraid to try most of his suggestions.

I felt I had two choices – give up on recovering Annie or strike out on my own. I decided to take some time off from the DAN! stuff and to go it alone.

A lot of the moms I talked with on the chat boards had experienced success with Nutrigenomics. To me, it made sense to customize Annie’s supplementation based on her unique genetic mutations, so I decided to give it a try. I sent in some of Annie’s blood and anxiously awaited the return of her Nutrigenomic panel results. This test was designed to tell me what mutations Annie has in the genes related to the methylation pathway and how to support those mutated genes with supplementation. Supporting the methylation pathway leads to better brain health, immune support, nerve health, and energy.

When I got Annie’s results I was relieved and yet, strangely disappointed. I was relieved because Annie did not have any double mutations (mutations inherited from both her father and I). In other words, all of her genes were functioning to some degree. However, she did have several single mutations (or genes that were not functioning optimally). I was disappointed because the supplement plan to support single mutations was confusing and ambiguous… sometimes you need to support the gene and sometimes supplementing it could make it worse. I was back in the land of guessing and experimentation.

The plan required giving lots and lots of supplements in low doses. You were advised to start each new supplement several days (if not weeks) apart so you know if each particular supplement agrees with your child. The idea being that if adding the new supplement was the only thing you changed for your child in a given period of time, then you can safely attribute any positive/negative changes to that particular supplement.

Annie’s tantrums seemed better after starting the first couple supplements (about a month on the plan). I was so excited that I stupidly stopped waiting the advised number of days before adding new supplements. Before I knew it, Annie was on over 20 different supplements, she had gone crazy, and I had no idea what was causing it. I had to start over.

I took her off all the supplements and began again, but I quickly realized that this plan wasn’t for me. It was too confusing to try to figure it out without being able to talk with someone. I think if Annie had double mutations where supplementation is clearly needed, this plan would have worked better for me. I was back on the hunt for a new direction. HEAD BANG NUMBER ONE.

I had read a lot about Linus Pauling’s work with Vitamin C – that it can chelate, kill viruses, build the immune system, etc. So, I decided to give high dose oral Vitamin C a try. Annie’s diarrhea got worse, she got more stimmy, and became ridiculously hyper and aggressive. I called my DAN! doctor to ask for help and he informed me that the reason he does not advise high dose Vitamin C therapy is because most forms of Vitamin C are derived from corn, and many children with autism have severe corn allergies. Well, Annie is one of those children with a major allergy to corn – mystery solved. HEAD BANG NUMBER TWO.

Our doctor told us he could recommend a Vitamin C derived from Cassava, but he advised against doing high dose oral therapy. Instead, he suggested I try intravenous (IV) Vitamin C therapy. I decided to give it a try. To this day, I think the IV Vitamin C therapy might have worked, but getting Annie to comply with the IVs was just too stressful. During our first IV treatment, it took 3 people to hold Annie down (me, my mom and a nurse) and another nurse to administer the IV. Annie only spoke 1 or 2 words at a time back then and yet, she managed to mutter, “Mommy make it stop. I promise I’ll be good.” My heart broke. I knew at that moment I couldn’t torture her on a weekly basis. I went back to the drawing board. HEAD BANG NUMBER THREE.

Her DAN! doctor suggested we work on improving Annie’s sleep. Ever since we tried hyperbaric, her melatonin wasn’t cutting it anymore. She was pretty much nocturnal (only she didn’t sleep during the day either). Annie’s doctor suggested a “sleep cocktail” for bedtime – a mixture of GABA, Magnesium, Melatonin, and 5HTP. I had to give Annie high doses of all of them to finally get her to sleep. And month after month, the effects would seem to wear off and I had to keep upping the doses. For an explanation of what I believe caused this problem, please read  https://ventography.wordpress.com/2011/10/19/lessons-learned-part-three/.

What I took away from all of this was that I was done with high dose supplements for good. In my opinion, there is a reason the saying “All things in moderation,” has lasted throughout the ages. I needed another new game plan. HEAD BANG NUMBER FOUR.

About this time, Leah had put Brody on the Specific Carbohydrate Diet (SCD) and was experiencing amazing results! Brody had miraculously started talking up a storm right in front of my eyes. So, I figured maybe SCD would be the missing link for Annie too. I started her on the diet right away. But, the diet didn’t seem to help Annie. In fact, she lost weight and seemed to get sicker and even grouchier. I was beyond upset. Nothing seemed to be working. HEAD BANG NUMBER FIVE.

Was someone trying to finish me off? Was God trying to tell me to give up on healing my daughter? Should I just accept that this was the hand I was dealt and stop putting every last drop of effort I had into recovering Annie? But how could I ignore her real and devastating health symptoms? I knew she was in a state of constant pain and anxiety. How could I look the other way?

Right as I was reaching the point of giving up, I got a call telling me that I had received an appointment with a DAN! doctor who had a 2 year waiting list. I truly felt like I had won the lottery! While I still had tremendous respect for our original DAN! doctor, I felt I needed a second opinion. So, I made an appointment with the new doctor right away.

I learned 2 key things from the new Doctor. One, Annie had severe metabolic acidosis. Two, there was a new chelator I could try that was not a drug, it was an antioxidant, called OSR.  Once again, my hope for Annie’s recovery was renewed.

To be continued…

For Parts 1 – 7 of Annie’s Story https://ventography.wordpress.com/category/annies-story/

For more information on Nutrigenomics http://www.healthinducedautism.com/nutrigenomic-dna-testing.html

For more information on the Specific Carbohydrate Diet http://www.healthinducedautism.com/specific-carbohydrate-diet-scd-information.html

For more information on Methylation http://www.healthinducedautism.com/methylation.html


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HYPERBARIC OXYGEN THERAPY – ANNIE’S SECOND REGRESSION

ANNIE’S STORY – PART SEVEN OF TWELVE

After trying and failing at several Defeat Autism Now (DAN!) interventions, I thought Hyperbaric Oxygen Therapy (HBOT) was going to be our saving grace. My husband and I gambled big… we drained our savings account and bought a home unit.

We were told by our DAN! doctor to go in the chamber 60 minutes a day, every day, for 2 months. At this time, Annie spent a lot of her days running aimlessly around our house. In addition, she flipped out if she was confined in any way. So, I wasn’t thinking she would enjoy hopping in our coffin sized HBOT chamber very much.

I admit, getting Annie in the chamber the first time wasn’t pleasant. However, after we completed the first session and she saw that it didn’t hurt and we weren’t going to be living in there forever, Annie loved it. In fact, she would crawl in the chamber multiple times a day. This was her way of telling me she wanted to do a session. I thought, “We’re on to something, this must feel good to her and it must be helping.”

We completed our 60 dives over 2 months. Then, we had a check in with our doctor to discuss results and do some tests to make sure Annie was healthy enough to continue treatments. I told the doctor that Annie did not have any increase in expressive (spoken) language as we were hoping for. However, she did make a big leap in receptive language. In other words, suddenly she could understand what we were saying to her. Prior to hyperbaric, Annie could only follow 1 or 2 step commands. But after our 60 dives, she could follow complex, multi-step commands. In addition, she seemed to be sleeping a little better. I was very encouraged.

After taking a month rest from hyperbaric, the doctor advised me to increase to 2 sessions a day (120 minutes a day). I truly believed that this was it – Annie’s recovery was on the horizon. But that was not the case.

After a few weeks of the increased treatments, “the wheels seemed to be coming off the tracks.” Annie’s bowel movements got worse. The diarrhea was back. The dark circles under her eyes got worse. Her stimmy-ness got worse. And most disappointing, her behavior got significantly worse. She went back to having several tantrums every day and became very aggressive. We were all “walking on eggshells” – never knowing why or when she was going to explode. It is also worth noting that Annie no longer asked to get in the chamber. In fact, she fought me about getting in. It became a daily battle.

One day, Leah and Brody came over right after we had finished a session. Leah told me that Annie’s eyes looked weird to her. Annie was staring off into space a lot (something she had never done prior to hyperbaric). Leah point-blank told me that she thought Annie was having mini-seizures and that she didn’t think we should be doing hyperbaric anymore.

I saw that Annie was regressing. I saw that my daughter did not want to do the treatments any more. I heard my closest friend tell me not to do the treatments anymore. And yet, I kept on going.  It wasn’t because we had spent our entire savings. The reason I kept on going was because I had believed, with my whole heart, that hyperbaric was going to be the intervention to finally heal Annie. I didn’t know what else I could try if I gave up on hyperbaric. To me, giving up on hyperbaric felt like giving up on Annie.

This is one of my biggest regrets now. I wish I had listened to the signals Annie was giving me a lot earlier. Just like she knew it was good for her in the beginning, she knew it was too much for her when we increased the number of dives. Our children have extraordinary inner wisdom and I wish that I would have paid attention, instead of clinging to my desperate hope.

We didn’t finish our last week of “double dives”. I had finally come to my senses. We stopped hyperbaric all together. Annie’s behavior got better, but it still wasn’t great. I was dealing with at least 1 tantrum per day instead of multiple tantrums every day. Annie did not lose her gains in receptive language, but her health was clearly worse as a result of too much hyperbaric. Annie was hardly sleeping at all.

I have come to believe that the reason everything went wrong when we increased the number of dives was because Annie’s yeast got worse and she experienced too much detox, too fast.

This was a real wake up call for me. I was mad at myself for hurting my daughter. I had no idea what my “next move” was going to be. I was really “down in the dumps.”

To be continued…

For Parts 1 – 6 of Annie’s Story go to https://ventography.wordpress.com/category/annies-story/

For more information on Hyperbaric Oxygen Therapy go to http://www.healthinducedautism.com/hyperbaric-oxygen-therapy-hbot.html


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MOLLY’S GUIDE ON HOW TO ANNOY YOUR DAN! DOCTOR

ANNIE’S STORY – PART SIX OF TWELVE

After Annie’s regression, I saw some encouraging gains from starting her on the Gluten Free Casein Free Diet (GF/CF) and some basic supplements. I had read all about the Defeat Autism Now (DAN!) protocol and was anxious to try it. I knew I was at the point where I needed professional help in order to get Annie to the “next level.” So, I found a DAN! doctor and made an appointment as soon as possible.

The doctor’s first step was to order tons of lab testing – blood, stool, urine, etc. The results confirmed what I already knew; Annie was a sick little girl!

Since Annie was already on the GF/CF Diet, her doctor wanted to begin by addressing her food allergies. According to the lab test, Annie was allergic (“sensitive”) to just about everything. Her doctor asked me to eliminate all the foods she was allergic to for 60 days. This was another drastic diet change. On top of eliminating gluten and casein, I no longer let Annie eat corn, soy, additives/preservatives, food coloring, chicken, potatoes, tomatoes, and numerous fruits.

I was overwhelmed. I had to learn to make everything from scratch. This was not easy for me since my idea of cooking was heating something in the microwave or thawing a frozen dinner. Annie seemed to hate everything I made. But after a period of trial and error, and a lot of help from my mom, I finally found new things she would eat. After 60 days on the elimination diet, Annie’s gut issues were significantly better and her language took another jump. Even though her doctor said I could add back in some of the foods Annie was allergic to, I decided to keep her on the diet. I didn’t want to do anything to cause more inflammation to her gut.

Next, the doctor wanted to attack Annie’s yeast (candida). He wrote us a prescription for Diflucan and I filled it right away. But once I had the pills, I was too scared to give them to Annie. I just stared at them every day, but couldn’t bring myself to give them to her.

This was the beginning of what Leah and I call my “supplement graveyard” – where supplements go to die. I have a cabinet, filled with supplements, that I once thought were going to be the “magic bullet” for Annie. But now, I have given up on them for various reasons and yet, I still can’t bring myself to throw them out. They are like my pets. I admit it – I am a supplement hoarder.

But back to Diflucan. From what I had read on the internet, Annie would have to be on and off of Diflucan (or other, even stronger prescription antifungals) for a long time in order to keep the yeast under control. To me, that just didn’t seem like it would be healthy for Annie in the long run. Since I had made a vow to follow my “mom instinct,” I opted not to give her the pills and explained my rationale to my doctor at my next appointment. I asked him if we could try natural antifungals instead. To his credit, he did not make fun of me or put me down and agreed to follow my intuition.

I tried probiotics, grapefruitseed extract, olive leaf extract, monolaurin, caprylic acid, uva ursi, and oregano oil. I tried them in various combinations and potencies. I rotated them. I tried everything to make them work. But the lab tests proved I was doing little more than keeping Annie’s candida in check. It hadn’t gotten worse, but it wasn’t any better either.

My doctor and I were at a stalemate on the yeast issue, so he moved on to other suggestions. He helped me add several key vitamins as indicated by Annie’s lab tests like: Vitamin D, Riboflavin, Magnesium Malate, Zinc, Co Q10, GABA, and Inositol. He told me to give Annie Melatonin and 5HTP to help with her sleep issues (they helped her fall asleep, but then she’d wake up at 2am ready to rock-and-roll). Lastly, he prescribed Methyl B12 shots to be given every 3 days.

From these additions, we saw more exciting progress. Annie’s vocabulary continued to grow, she was more aware, less stimmy, and her sensory issues were better. The most dramatic change came from the B12 shots. After a month of the shots, Annie was back to the social little girl she was before her regression. Once again, she marched right up to kids desperately trying to play and talk with them despite her limited language.

Next, my doctor spoke to us about chelation. He believed Annie could benefit from EDTA suppositories, since she had extraordinarily high levels of lead in her system (along with plenty of other heavy metals). I read about EDTA for myself and learned about the possibilities of chelation disturbing mineral balance in the body and/or the heavy metals doing additional damage to Annie’s brain on their way out of her body. The risks seemed too high, so I declined and asked my doctor if there was anything else we could try.

He suggested nebulized Glutathione as a way to improve my daughter’s immune system and perhaps, get the body to chelate itself. Well, that process was a nightmare. I had to wrestle Annie to the ground and try to hold a mask on a kid with sensory and anxiety issues! Not fun. And on top of that, it made her horribly hyper and stimmy. I wanted to try oral or topical Glutathione next, but the doctor informed me that they often lead to a yeast outbreak so, I gave up on Glutathione altogether.

Our doctor, bless his heart, was still willing to work with me despite all of my neuroticism. His next suggestion was the Hyperbaric Oxygen Chamber. Once again, I did my homework. But this time, I had a good feeling about it. For some reason, it made sense to me. I felt like inflammation and lack of blood supply to the brain were at the core of Annie’s issues and it seemed logical to me that hyperbaric could really help. I was beyond excited. We drained our savings in order to buy a home hyperbaric chamber. I could not wait to get started. I was fully expecting a miracle.

To be continued…

NOTE: I want to make sure that nobody thinks I am bashing DAN! doctors or the DAN! protocol. The DAN! doctors I’ve encountered are amazing human beings who truly want to help children with autism (in fact most of them have children with autism themselves). I know the DAN! protocol has recovered or improved the lives of many children and families struggling with autism. For Annie, I believe the DAN! interventions we did improved her health dramatically and laid the foundation for what was to come.

FOR PARTS 1-5 of ANNIE’S STORY: https://ventography.wordpress.com/category/annies-story/

For information on:

DAN! protocol: http://www.healthinducedautism.com/overview-of-dan-approach.html

Elimination diets: http://www.healthinducedautism.com/elimination-diet-allergy-diet-information.html

Allergy therapy: http://www.healthinducedautism.com/allergy-therapy.html

Candida treatment: http://www.healthinducedautism.com/candida-yeast.html